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Really inspiring, read what kids belonging to the Epilepsy Foundation of America are doing:

Jackie Quetti of Massachusetts (18 years old) has spoken about
epilepsy at a school assembly, will be featured in an upcoming
newspaper article about her trip to Washington, and is organizing a
fundraising walk.

- Brennan Bayliss-Feldman of Arizona (12 years old) has collected more
than 500 signatures on a banner addressed to President Obama that urges
him to make finding a cure for epilepsy a top priority.

- Carly Stafford of Colorado (16 years old) has written President
Obama, collected 150 signatures on a petition in support of funding a
cure, and is planning to speak about epilepsy to the local Rotary Club.
  She's also made a video that you can watch at

- Jillian Youker (11 years old) of Michigan has also collected
signatures on a petition to President Obama in support of finding a
cure and has spoken with many of her schoolmates to educate them about

- Sisters Dana and Zoey Wade of New York (13 and 16 years old) have
spoken at their school about epilepsy and are organizing a fundraiser.
They've already collected $14,000 (!) and hope to bring in more than
$20,000 when the event is over.

- Jack Dau of New Jersey (age 10) is organizing an epilepsy walk at his
school this month and is working with the New Jersey Epilepsy
Foundation to conduct education seminars for all 750 students in his

Whether you're a kid or an adult, you can help!


  • Bharati Rathod

    May 12, 2010

    Hi Carol, awareness cum action at the grass root level. Its fantastic. Thanx n my regards to all at E-Cell.

  • Carol D'Souza

    May 18, 2010

    Great isn’t it. Now that our kids are sure of passing upto the 8th grade may be they will have time for advocacy.

  • Fati P

    September 17, 2011

    My name is Fatima Patel, a graduate student from the Department of Nursing at Depaul University. I would like to invite you to participate in my research study that investigates the Caregiver’s perspective on caring for a child with epilepsy who has a gastrostomy tube (G-tube). You may participate if you are a parent of a child with epilepsy who has a G-tube. Please do not participate if your child is under 1 year of age or over 14 years of age.

    As a participant, you will be asked to take a survey that will take about 15 minutes.
    All your responses will be kept anonymous and confidential. You may decide, at any time, to stop taking the survey if you change your mind. The results from this research may be used to improve the education and training caregiver’s receive regarding the G-tube.

    If you would like to participate in this research study, please follow the link to begin taking the survey: https://www.surveymonkey.com/s/Y35N9NF

    If you have questions, please contact me at [email protected] or you may contact my research advisor Lori Thuente, at LTHUENTE
    Please forward this to your friends. I really need your help to complete this research. Thank You

    1. ecellin

      September 19, 2011

      If I come across any caregiver of a child with epilepsy who has a gastrostomy tube (G-tube), I shall let you know. Best wishes, Carol

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Samman Association, the Mumbai Chapter of Indian Epilepsy Association, is dedicated to empowering people with epilepsy and their caregivers.







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