Just returned from a lovely holiday in Goa, where coincidentally I met Dr. Pravina Shah who was staying in a hotel just opposite my resort, and decided to update my blog. Led by Christopher, people discussed their epilepsy related needs and felt that there should be talks on the following issues:
Updates on Epilepsy
Adjustment in joint family
Adjustment to marriage and taking responsibility
Surviving with epilepsy
Problems of travelling and fears of people taking advantage of the pwe during a seizures
Fear of withdrawal of support from family friends relatives in event of seizures worsening
Problems related to loss of memory
Phobia of talking to people without epilepsy
Epilepsy and getting Married- a prevention of taking responsibility – a moral problem
Employment and Epilepsy – Discrimination
Guidence to members who have other ailments like hypertension diabetes or any other along with epilepsy regarding diet exercise etc
Dr. Pravina Shah felt that we should try and arrange these talks, make a time table, and inform people about the topics in advance.
Additionally members felt we needed an outing / picnic for people with epilepsy and their caregivers. Members also felt we could have an EPILEPSY AWARENESS WALK.